Page 1: Participant Information

Title of Project: Dental preparation of children and young people with cardiac disease by children’s cardiac nurses in the UK: An online survey

The University of Worcester engages in a wide range of research which seeks to provide greater understanding of the world around us, to contribute to improved human health and well-being and to provide answers to social, economic and environmental problems.

Project Lead:

Dr Kerry Gaskin, Head of Department Midwifery and CPD, Three Counties School of Nursing and Midwifery, University of Worcester, Chairperson of the Congenital Cardiac Nurses Association (CCNA)

Project Team:

Dr Mina Vaidyanathan, Consultant in Children’s Dentistry, Chair, Consultants in Paediatric Dentistry Cardiac CEN, Guys and St Thomas’ Hospital, London

Dr Nabina Bhujel, Consultant in Paediatric Dentistry, Guys and St Thomas’ Hospital, London.

Aylen Ebru Dervish, Dental Therapist in Department of Paediatric Dentistry, Guy's and St Thomas' NHS Foundation Trust, London, UK

Di Robertshaw, Nurse Practice Educator, Great Ormond Street Hospital for Children NHS Trust. Membership Secretary/Treasurer of the CCNA

We would like to invite you to take part in a research project which involves completing an anonymous online survey. Before you decide to take part it is important for you to understand why the research is being carried out and what it will involve.

What is the purpose of the research?

This study aims to ascertain the appropriateness and consistency of information provided in relation to preventative dental care for children and young people (CYP) with acquired, inherited or congenital heart disease and their families.

Why have I been invited to take part?

You have received this invitation because you are a nurse working with children and young people with acquired, inherited or congenital heart disease and their families. We are hoping to recruit 50 nurses for this study.

What will happen if I agree to take part?

If you agree to take part, you are asked to complete an online survey via the url. The survey will take approximately 15 minutes to complete. The questions aim to:

  • Ascertain your role within the network and your grade band
  • Ascertain what educational preparation you have received about dental care
  • Ascertain whether preventative dental advice, dental techniques and risks are discussed with CYP and their families and how confident nurses feel giving this advice
  • Ascertain levels of awareness of the National Dental Standards
  • Ascertain what sources of dental information are provided to CYP and their families
  • Ascertain how referrals are made to dental services
  • Ascertain how well the CHD service specifications (NHSE 2016) are being implemented across England.

Do I have to take part?

No. It is up to you to decide whether or not you want to take part in this study. Deciding to take part or not will not impact on your clinical role. The survey will be open until 6th December 2021.

If you do decide to take part, you will be asked at the start of the survey to agree to a number of statements to indicate that you are over 18 years old, have read and understood this information and agree to take part in the survey. By submitting the survey, you are providing consent for the data you have given to be used in the study.

You can withdraw from the study by closing the browser page down without submitting your responses and your data will not be saved. Please note that once you have submitted your survey responses you will be unable to withdraw your data as participation is anonymous.

What are the benefits for me in taking part?

The general benefits of participating are a contribution to knowledge, better understanding of a dental preparation given to children, young people and their families across the UK. The information gained will be used to improve clinical practice through the development of educational resources and guidelines.

Are there any risks for me if I take part?

No

What will you do with my data?

The data you submit will be treated confidentially at all times. No personal identifiable information will be obtained during or as part of the study. Your answers will be completely anonymous.

If the researchers identify any aspects of poor practice from the individual participant responses, the Lead Nurse for the Network will be informed about the perceived poor practice that has been identified. We will not be able to provide the Lead Nurse with details of the participant that has provided the information as the survey is anonymous. If you have any concerns about poor practice you are advised to raise these concerns through your Trust’s clinical governance policies and raising concerns procedures

We may submit all or part of this research for publication to academic and/or professional journals and present this research at conferences.

During the project, all data will be kept securely on password protected computers in line with the University’s Policy for the Effective Management of Research Data and its Information Security Policy. The data will be accessible to the research team.

How long will you keep my data for?

At the completion of the project, we will retain your data in the anonymised form that it was collected

This anonymised data will be archived and shared in line with our Policy for the Effective Management of Research Data

Thank you for taking the time to read this information